pairofgenes

Life is just a bowl of cherries- assuming that cherries suck.

In Uncategorized on May 15, 2012 at 11:27 am

So, I am going to try and make this update succinct and simply stick to the facts because my level of fragility is rather high at present and as self-pity is something I prefer to make a party of one, I shall keep the chit chat light and to the point.

I had my pre-op visit today with my breast surgeon and my plastic surgeon.  It was agreed upon that I am too overweight at this point to proceed with the flap reconstruction so I will have to opt for breast implants should I want immediate reconstruction.  My plastic surgeon suggests a C cup so that I am proportional, meaning that my boobs still exceed my belly in terms of how far each sticks out.  My choices were to put off the surgery until I lose weight, the downside of that being a game of roulette with the arrival of my cancer because as they see it, it’s a matter of when, not if, and I’m not really one for gambling with those odds.  So that leaves me with the falsies- which for most people is a perfectly fine option, but frankly, I have an immune system that is so inept it attacks it’s own perfectly healthy cells.  While there is no indication that my MS will reject implants, I have always feared that my immune system will go on the defensive with something it identifies as foreign.  Also, and certainly less significant but still a factor- I am a mess of a person in many ways but I have always prided myself on my authenticity- fake boobs do not fit this perception I have of myself.  With that said- I could opt for no reconstruction, the surgeons have left that option open for me- so that is still something to consider.  Fuck, I don’t know what to do- all I know is I wanted the flap reconstruction, it addressed all of my concerns, and I have no one to blame but myself for the fact that I am too overweight to proceed as planned.

More good news, one of my surgeons is also concerned at the prospect of my going back on Estriol as a hormone replacement therapy after my hysterectomy.  Estriol, for those who haven’t taken notes, is the trial drug that I have been on for the last two years.  MS goes into remission for women when they are pregnant so the study has had women ingest pregnancy doses of Estriol to mirror pregnancy.   Since the start of this trial, my health has improved exponentially.  Now there are concerns that taking hormones can increase my risk of developing breast cancer.  And you might ask, but aren’t your boobs taking leave of your body?  Well yes they are, thanks for asking.  But there is no way to remove all of the breast tissue, they can only decrease the chances by 90-95%, and with BRCA1 and BRCA2 they will want to be vigilant about not adding anything that could exacerbate cancer growth.  It is possible that estriol could do just that.  My wonderful breast surgeon said I will have to have a heart to heart with the lead oncologist at UCLA and assess risk vs. benefit.  I’d like them to assess if it might not be easier to just take me out back and shoot me.  Oops- is that self-pity I see before me??

So, here are the upsides of implants vs. flap reconstruction.  The surgery is about 1/2 the length- 6 hours as opposed to 12.  My hospital stay will be 3 nights as opposed to six.  I will not have an abdominal incision, therefore I’ll only have 4 drains instead of 6- can I get a woo woo!  The recovery is easier- but as I said, upkeep is required and each subsequent surgery is an opportunity for my MS to attack and possibly progress.  And I’m pissed.

But mostly, here’s why I’m pissed.  Losing weight for this damn surgery was the one thing in this whole mess that I actually had in my control.  Instead of embracing that control, I tried new diets that sent my body into some type of shock and shut down my metabolism, and I fed my unexpressed anxiety to keep it nice and contained.  And so, I have lost control of this too, and I will have to proceed in a way that is not at all in line with my larger plan.

My mother is relieved with the new course.  She was concerned that my MS was going to reject the new tissue from the FLAP procedure so she is pleased with this turn of events, and I can see why.  But this whole thing, the research, the surgery, the genetic testing, this is all about the long haul, and I don’t like the idea of a haul that requires a boob tune-up every 10 years.  But I suppose it beats cancer.

So I am focusing on the immediate.  Lowering my cancer risks, keeping my MS in check and living a long enough life to see my son do all of the things my folks got to see me do- minus the illnesses.  The weight, well I’ll just have to keep that on the list of battles I have ahead of me.  Everything I’m doing is to achieve one goal, to hang around for an eight year old who couldn’t care less if my boobs are fake.

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  1. Please don’t beat yourself up. You think it’s the one thing you have control over when in fact, what science has shown is that most people cannot maintain weight loss even when sticking to diets and exercise programs. The one well-established fact about attempts to diet is that people are more likely to gain weight than sustain loss. (Seven prospective studies of dieting behavior indicate this; none show the opposite!)

    The surgery is a big deal and should be important, but As Thoreau said, “Go confidently in the direction of your dreams. Live the life you’ve imagined.” I am trying to do that every single day. Sounds like you are, too.

  2. Self-pity and self-blame are bad for your health, and that’s also opposite of your goal for the big picture so I say screw those guys! Keep your head up pretty lady, I’m proud of you and I know that everything is going to be fine, even if it doesn’t fit with what you thought was the “plan.”

  3. hey sister. first, apologies for not keeping up with this blog as my wife has been suggesting I do for some time. i don’t really read blogs and i can barely write my own. so that’s that. but now having read it, just thanks. i admire you for living through it. i admire you for reflecting on all of it and somehow managing to make us laugh at a time that can’t be too laugh inducing on your end. i just all around admire you and love you, Lev…. Big tits. No tits. Fake tits. Gut tits. I’ll love and admire you and those tits no matter what. xox.

    • No apology necessary- I am the same way with other blogs- I manage to follow BRCA blogs and that’s it- but I’m grateful for the note and for both of you- more than I’ll ever be able to express…xoxo

  4. “Everything I’m doing is to achieve one goal, to hang around for an eight year old who couldn’t care less if my boobs are fake.”

    Hell- if you could have them shoot rockets or something, he’d maybe even think they’re cooler-

    And as you’ve already heard, he ain’t the only one who’s MUCH more interested in you hanging around. Okay? So though it’s hard right now, when you can- buck up, little camper-

  5. Good thing we didn’t make it to Tommy’s!!

  6. Amy, your honesty in this post is admirable. You will kick all of this in the ass. Just remember: take it one day at a time. Like Bonnie Franklin. Just without that haircut. Sending healthy thoughts to you. Joe

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